Rheumatoid Arthritis

I've been told by several rheumatologists that they can't give me the
TNF drugs because of the Hidradenitis Suppurativa. I have tried to
explain to them that although it may look like an infection that it is
not an infection it is a disease. They still will not treat me with
the TNF drugs. What is funny is before I told them about the HS (the
only reason I did was because I had trouble sitting that day) the
Remicade worked wonders for the HS, but did very little for the RA.
All they give me are nsaids and all I get from those are major gastro
problems. What do you think?
Teah

Thank you Marcia....I will definitely look at the Crocs. I know your daughter knows what she's talking about after being on her feet all day.

Thanks again so much,

....Paula

Checked out the Crocs...like them but I'mlooking for a ligthweight tennis shoe sonce i need to insert orthotics.

Thanks..Paula

I hope you feel better soon. Keep us posted on how you are doing. Hopefully you'll be able to take the injection soon and get back on your routine.

((((hugs)))

Teah

I was just given another diagnosis of myoclonus, in addition to my
RA. It didn't start though until after my back surgery in December of
2005. However, it is horrible and I don't know what brought it on or
if the surgery just triggered it.
Anyone else have this diagnosis or know anything about it?
Thanks,
Miriam

Is anyone on this list taking Lodine XL for their RA? My doctor just
prescribed it but I am wondering if any of you who might be taking it
have any feedback on it. Does it work well? Did you have any side
effects? I am already on so many pills, and still in pain, that I
worry about starting another one.
Thanks,
Miriam

Well, today was suppose to be by Humira injection day. However Friday night I started with a sore throat which continued and got worst by Saturday night. When I went to bed I was running fever and feeling pretty crappy.

Today I still have the sore throat and no voice. So I guess no Humira for me! I will have to call the doc on Monday and see what he says.

I was looking forward for at least the 3-4 days of relief I get from Humira...but not looking forward to injecting acid into my skin and the burning that lasts for well over an hour after the injection.

I just don't think Humira is going to be the drug that works for me. I will try to stick it out for another 7 months though because the medication does not cost me anything. Then I will explore other options.

Toni

Shoes....

What I want is a nice soft, lightweight white tennis shoe. I need a wide...and also have orthotics that I need inserted. We do have a New Balance store here but I have found that their shoes are heavier than I want.

Easy Spirits always look good to me but haven't tried them in a long time. I know that the last time i tried them..the one particular shoe was kind of hard..but that was 13 yrs ago. Maybe they have come out with a softer lightweight shoe.

Paula

http://www.medicinenet.com/script/main/art.asp?articlekey=60199
I know this is only one study but for me personally it gave me more certainty
that I am doing the right thing for my RA. I hope it gives others who are
afraid
of the Lymphoma risk some comfort to try the TNF drugs.
I know parts of the article are depressing but I think the key is here to treat
your RA as aggresively and as soon as possible.
Elizabeth

www.propetusa.com

Paula

Thank you, thank you Mary!! I am going to check out the Nike's and all. Also, the site you sent.

If I have any questions, I'll email you!!

Thanks for the good information on sizing. I never knew the sizes before.

Hugs..Paula

You're right Mary! I have to have shoes that are seamless. I have tried the NewBalance but want to try something in a lighter weight.

Thanks..paula

Their website only has a place to contact them. so, I'll be doing that.

Paula

Hello.
We are sending you this email to invite you to participate in an on-
line web survey. The study aims to investigate the internet as a
form of support for those who have RA. The study should only take
about 20 minutes and involves filling out 1 questionnaire about your
personal feelings. The findings of this study will hopefully provide
evidence that internet discussion groups are valid form of support
for those who have RA. Such evidence would have important
implications for those who self-harm and/or have an RA and their
friends, family and healthcare workers.
The study is being conducted by a psychology undergraduate at the
University of Manchester, UK, under the supervision of a member of
staff. It has been screened and approved by the School of
Psychological Sciences Research Ethics Committee at the university.
In addition we sought and were given permission by the moderator of
this group to advertise this study. We shall be collecting data
between now and late March/early April and will provide feedback to
the discussion group when the research is complete. We would be
grateful for as many people to participate as possible.
If you would like to discuss any aspect of the study prior to
deciding whether to participate please make contact via the
following email address:
craig.murray-2@...
If you are happy to participate in the study, please follow the web
link below:
www.freeresponse.org/projectindex.aspx

www.sasfootwear.com

Maybe this will be of help. I am going to look into them also.

Paula

Any one else here feel like they could qualify for the guiness book of
world records with all of the medical problems that we have? I told me
dr. this and I thought he was going to fall off of his stool laughing.
He knows I have a dry sense of humor, but I really feel like that
sometimes.
Teah
Diseases and conditions: epilepsy, RA, fibro, hidradenitis suppurativa
(took me years just to learn how to say it and more years to learn how
to spell it), restless leg syndrome, asthma, IBS and now the dr. is
looking into seeing why I'm having such bad muscle spasms in one leg -
he's thinking that there may be some connection with the RA and muscle
deteriation.
Shoot - maybe I am ready for the guiness book...lol

I went to the doctor for my yearly physical. The nurse starts with
certain basics. "How much do you weigh?" she asks. "115," I say. The
nurse puts me on the scale. It turns out my weight is 140.
The nurse asks, "Your height?" "5 foot 8," I say. The nurse checks and
sees that I only measure 5'5".
She then takes my blood pressure and tells me it is very high.
"Of course it's high!" I scream, "When I came in here I was tall and
slender! Now I'm short and fat!"
She put me on Prozac.
Ila in Maine mailto:sewcraftyila@...
"I'm Halloween's answer to Santa Claus."
Stephen King

I haven't been here in a long time - been dealing with another disease.
My question is that I have been having spasms in my left leg (severe)
that encompasses the whole leg and draws up the foot. My family doctor
is doing some lab work CPK and sed rate to see if there is any muscle
deteriation. This has been going on for over 2 months now and is very
painful to walk on. Could this be part of RA or some other autoimmune
disorder?
Thanks,
Teah

I'm just curious about something. A few weeks ago I saw a podiatrist at my RA's suggestion. Anyhow the podiatrist suggested I look into diabetic shoes. He suggested that even though I don't have diabetes he thinks it might be a good idea. He say's I don't have much padding on the balls of my feet and he thinks diabetic shoes might help. He actually said something along the lines of there not being much between the bones in my feet and my shoe. Or something like that.
I was just wondering how common is something like this for people with RA?

I was curious if anyone is receiving a service-connected disability
through the VA for Rheumatoid Arthritis. I am in the process of
trying to have it added to my claim, and was seeking some advice. Any
advice would be greatly appreciated.
Thank You,
Dawn

Hi all:
I have not yet been to see a doctor. Two years ago I started having
terrible pain in my left hip. Nothing relieved it. i never told my
doctor because I just told myself that I'm getting old. (I'm 54) It has
now gotten much worse.
I recently had to go to a gastroenterologist. During my visit, he
picked up my right hand, looked at it, and said "oh. You have
arthritis." When I was pregnant with my second son (he is now 18), I
had terrible lower back pain. After running tests, the obstetrician
told me that it was not due to my prgnancy. He said I have rheumatism
(his exact word).
Now my knees hurts, the little finger on each hand swells and hurts
terribly, and even my shoulders hurt. My knuckles stay red. Now both
of my hips hurt, not just the left one. I get up in the morning and
feel horrible for about 45 minutes. Then for the rest of the day, my
little fingers, shoulders, & hips hurt.
Does this sound like RA?
Sorry to rattle on so, but I don't know anyone who has RA.
Thanks so much,
sadie

Hi All,
For the last few days my ankles have begun to swell and my feet just
generally feel - uncomfortable - is the best way I can describe it right now.
These were begininng RA symptoms for me in the past. Of course people
and some docs are saying its because I am pregnant but I am only 11 weeks
and I thought this happens in the later months of pregnancy?
Since I have been pregnant, I've had flares of Costo, Fibro, Ulcerative Colitis
and some other RA pain in my CMC joints, wrists and arms. Nothing major
though as far as RA pain but I am worried!
Your thoughts are appreciated!
Elizabeth

Please help. My doc did X-Ray and blood tests and says
I do not have RA, atleast not yet. But he is unable to
explain why I have the following symptoms:
1) Morning stiffness in the left leg
2) If I sit for more than 20 minutes, my left feet
and leg goes a little numb and some tringling in the
left feet.
3) If I walk, no issues
4) No knee pains but mostly muscle groups in the
thighs and feet pain when I sit for over 20 minutes.
5) I have been having these symptoms now for over 3
months and it doesn't seem to go away. The degree of
discomfort has reduced a bit but I can feel it all the
time.
6) Which symptom can tell you that one has 100% RA?
Thanks & Regards,
RV

Hi,
My name is Sandy and I have had RA for over 7 years now, and have now
been also diagnosed with FM. Oh joy! Anyhow, my Dr. prescribed
Humira injections for me starting Thursday...that is the day I will
learn how to give my self the injections. Let me tell you...SCARED
can't begin to describe how I feel about this whole thing. I hate
needles!!! Please, please, someone help me out here and give me the
411 on the drug itself, does it help, and how bad is it giving
yourself a shot every week? I am freaked!!!
Thanks
Sandy

Hi All,

I have to take MTX injections 15ml ones in every week. But i dont take Folic Acid. is this alrite if i dont take ?

need your suggestions

cheers

Prathiba
You can continue you meds through drug assistance programs offered by the drug companies. MTX and folic acid are really cheap. I was on the MTX injections and a 3 month supply cost me less than $10. Folic acid pills can be bought OTC in the non prescription strength...talk to your doc about how many pills to take to bring you back up to an acceptable amount for him.

See if your doc will work with you on fees...most docs have cash pay fees as well as the labs do too.

Also check and see if you have a medicaid program,state run disability program or medical insurance program. Also look for any free clinics or drug studies you may be able to enroll in to get free meds and care.

Good luck

Toni

Send To A Friend Send To A Friend

Hello Group, Tuesday, February 21 2006
Your friend, Marcia Stoyle, thought that you would be interested in this article from PainCenterOnline.com.
http://pain.healthcentersonline.com/newsstories/statinsstudiedasdrugrheumatoidarthritis.cfm?nl=2
If the link above does not work please copy the text and paste it into your browser's address bar.
Marcia Stoyle also wanted to say: I found this very interesting...
Sincerely,
PainCenterOnline.com

PainCenterOnline is a division of HealthCentersOnline, Inc.

I also came across my diagnosis because i was having foot problems. I saw a podiatrist complaining of the soreness and achiness on the bottom of my right foot. He said it was scar tissue from wearing high heels. Someone at work told me to see a rheumatologist. I did and after some xrays and tests, he said my foot problems were caused by arthritis.

Paula

Hi all...

I took Enbrel first and was very satisfied with that medication. I had to mix it myself when first prescribed. Then, i started to get mouth sores. My rheumy took me off the enbrel. Since then, i have had all my teeth removed ( thanks to Sjogrens disease, etc) and have dentures. I feel that i could give the enbrel another try since i am not having problems with my mouth anymore. I will ask to have the enbrel that I mix myself since the premix burns like heck. I also tried Humira which gave me a bad allergic reaction..burning that didn't stop....red and black and blue area at the injection site and hardness. I developed a pressure ulcer from the scab that developed on the injection site that I had to go to wound care center for 3 months to get it taken care of. With the humira burning, i couldn't sleep and had my leg outside the covers with ceiling fan blowing on it. My rheumy told me to use benaryl before my shot and that would take care of the reaction but it
didn't. I contacted the Humira site...Abbott... and made my complaint ...also the FDA. It was horrible. It took weeks for the burning to go away. I believe it is the premix only that gave me the problems.

Hopefully, no one else will experience this.

Hugs..paula

My rheumy gave me videos and information on both of these drugs before
I started either. I think I chose the Humira because it was fewer shots
that I had to give to myself each month. Sounds like I made the right
choice after listening to everyone talk about Enbrel. I also believe I
am one of the lucky ones as I have not had any adverse reactions to any
drug I've ever taken. Right now I am only on Humira and Aleve. I wonder
how many problems (side effects) may be caused by unknown interactions
of the numerous drugs some of you are on.
Does the Arthritis Foundation have a database for "side effects/drug
interactions"? Couldn't that in some way help research?

Hi Eveybody,
It has ben a long time since I have posted. I have had some major
changes in my life. Has anyone experienced any pain associated with
the 50 MG shots versus the 25mg shots. I have took the 25MG shots
since I have been put on the enbrel woith the exception of trying
the 50 when it first came out. I have changed insurance companies
and I had to go through the fun of pre-authorization which took
several weeks. Anyway the 50mg shots hurt and sting fo several
minutes afterwards and also leave my arm or leg sore for several
days. The 25mg shots posed no problems for me at all except when I
gave myself the shot in the stomach. If amyone has had any luck
trying a different methods or tricks that has worked for them please
let me know. As a ex paramedic as experienced giving shots I have
never had any issues so I can only assume it is the medication. I
have called enliven and they cannot give me any advice or anything
that I have not already tried. I hope everyone is feeling well and
the weather is not hurting everyone to badly. Also has anyone had
any luck with Pain Managment doctors. I am cutrrently taking
Vicodin ES and I have been on it so long that it is no longer really
effective. If anyboy has any suggestions please let me know.
Dennis Brock

Hi everyone, here is a link to info on MRA
http://www.clinicaltrials.gov/ct/gui/show/NCT00046774

Can RA effect the spine? I know that because I am overweight my back can hurt. But I haven't gained any weight over the past year but I am getting more lower back pain. When I mention it to my doctor he says it's because I need to lose weight.

Vicki

Add FUN to your email - CLICK HERE!

--- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! ---

I have RA and I'm considering the MRA trial. My rheumatologist is participating.
I know there is lots of info on the web about it. I'll try to dig up something to send to the list...I dont' have time tonight...
Maria

On Sun, 19 Feb 2006 09:34:04 -0000 "Holly" <hollybgroovin2003@...

My name is Holly and I am new to the group. I have lupus and
rheumatoid arthritis. My RA is kicking my butt. I started on
prednisone, plaquenil, safasalazin, and volteren 4 months ago, and in
that time my sed rate tripled. The medicine did not work. My doctor
told me that there is a 90% chance that I will be in a wheelchair by
my 27th birthday next December. She wants me to try a experimental
drug called MRA that is supposed to be better than methotrexate. Has
anyone tried this, or even heard about it. I have 2 weeks to make my
decision, and I am really scared, but feel like I have no other
choices as my inflamation is just getting worse. Any thoughts?
Thanks, Holly
Maria

"Have no fear for what tomorrow may bring. The same loving God who cares for you today will take care of you tomorrow and every day. God will either shield you from suffering or give you unfailing strength to bear it. Be at peace, then, and put aside all anxious thoughts and imaginations."
-St Francis DeSales

My name is Holly and I am new to the group. I have lupus and
rheumatoid arthritis. My RA is kicking my butt. I started on
prednisone, plaquenil, safasalazin, and volteren 4 months ago, and in
that time my sed rate tripled. The medicine did not work. My doctor
told me that there is a 90% chance that I will be in a wheelchair by
my 27th birthday next December. She wants me to try a experimental
drug called MRA that is supposed to be better than methotrexate. Has
anyone tried this, or even heard about it. I have 2 weeks to make my
decision, and I am really scared, but feel like I have no other
choices as my inflamation is just getting worse. Any thoughts?
Thanks, Holly

Hi Susie......

Well...CONGRATS!!!!!!!!!!! I'm so glad that it was approved for you.

I'm like you. I rcvd my ss dis when I was 51 and not sure I really wanted it but had no choice. I feel I can breath easier now knowing i have a small check coming in each month and my meds and appts are taken care of. Wish i could work but that's an impossibility so i am happy with my ssdi.

Hugs and more congrats!!!

Paula

I just wanted to let everyone know my social security disability claim was finally approved. I know I'm not too sure how much I wanted it, but at least now I'm more ensured of an income than I was on long term disability. Plus, I'm getting at least 100 more a month than I thought I would. I'm still planning on going to college and doing whatever it takes to make this as temporary a situation as possible, but in the meantime it's all good. I should be able to move out of my parents home in the next few months. (I'm 49 years old and as much as I love my parents I miss my independence.)

Susie :)

Ok gang, I have questions.

I've been on Arava and Enbrel, and I've developed tingling and numbness in my feet. They said it could be the Arava or the Enbrel or both. Has anyone had this happen? My doc had me go off the Arava and Enbrel and I'm just on Voltaren now, and I've been feeling worse every day. I've also not noticed any improvement in my feet. Has anyone here experienced this? I am thinking that I'll put up with the foot issues to get my arthritis back to doing better....

Any thoughts appreciated.

Maria, adult onset RA, mom to Rob, juvenile ankylosing spondylitis

"Have no fear for what tomorrow may bring. The same loving God who cares for you today will take care of you tomorrow and every day. God will either shield you from suffering or give you unfailing strength to bear it. Be at peace, then, and put aside all anxious thoughts and imaginations."
-St Francis DeSales

I am sorry for interruption in the group. I have taken steps to
restore the group order and I feel the subject needs to be dropped and
the name calling stopped. Can we all let go?
If there begins to be another issue or problem with someone not abiding
by the guidelines, please contact me immediately.
David
dhhughes@...

I live in the north and have noticed that since being on meds for RA, I
tolerate the cold winter weather better. I feel stronger overall. I
used to wither like a tender leaf and feel overwhelmed by the cold...
Anyone else? (I'm on MTX and it's helped me very much.)
Sierra

Hi Angela.....everyone has their opinion about this. It's a good group for facts and info. People can agree to disagree.....that's what makes the world go round.

Many members are very knowledgeable so it's beneficial to stay. I'm glad that you are staying.

Hugs..Paula

THIS IS NOT A SALES PITCH! THIS IS A POSTING TO SEE IF ANY RA PATIENTS ARE
INTERESTED IN PARTICIPATING IN A MARKET RESEARCH STUDY THAT PAYS THEM $100
-150.
I work for Plaza Research which is a 25 y/o market research firm. We are trying
to put
together in-depth focus interviews for a client regarding Rheumatoid Arthritis
patients and
the medication that they take. There is absolutely no sales involved as the
client is
interested in their experiences. If the patient qualifies for the interview
(there is an initial
screening process for demographic reasons) and attends 1hr interview they
receive
between $100-150.
In addition, we are paying a referral fee of $75 to those who can refer patients
that qualify
and attend (please see the attached document for specifics). If this does not
sound like
something that you can help with may I ask you to pass the information along to
someone
who may be of assistance.
Again, there are no sales involved, and all information given is private.
If you live in the bay area and are interested or know someone who may be then
please
call 415-984-0400!
Cheers!

To All Members:
Adding signature lines with the intent to promote products and/or
services to our members is not allowed. Anyone found to be in
violation of this guideline will be asked once to refrain from using
it. Continued use of the signature line will result in them being
banned from the group.
Please help me keep keep this from happening with the group.
David Hughes
dhhughes@...

I started this yesterday at a very low dose. Did any of you have
bleeding as a side effect? I spotted all day yesterday.
They also started me on a high dose of Prednisone for 12 days and I'm
not sure which one caused the problem. I'm not due to start til late
next week.
Thanks,
Stacey

Hi,
my mother suffers from rheumathoid arthritis and I heard about
Flexprotex and phosoplex and would like to know they work and if
anyone had any results, opinions about these products. thanks in
advance. Mary

Hi everyone.
I'm feeling very frustated tonight.
For the past year I've been dealing with a skin reaction to
different medicines (first plaquenil and recently methotrexate) or
so I thought. My ra dr wasn't sure what the rash was from and the
dermatologist was pretty sure it was the meds both times I went to
him about it. We would start & stop my meds and it seemed like it
was definetely the medicine.
I've went off all med's again recently and my face cleared up and so
I was sure he was right. Until today. All of a sudden it's back, and
in full flare. My face is covered in this weird rash again and I
know now for sure it can't be those meds. Haven't been on them for
weeks. I've even stopped my mobic and nexium for the past two weeks.
So, I began looking (again) on the internet for info on arthritis
and rashes being linked and I found something called psoriatic
arthritis, kinda sounds like a combo of RA and psoriasis. Thinking
maybe this is what I truely have. Anyone familar with it?
Any info anyone has would be greatly appreciated. I'm getting to my
wits end. Something from the inside must be causing my skin to do
this. It's just my face (not the lupus rash for sure) and it spreads
down my neck just a bit.
Thanks
Tracy

Hi everyone
A possible cure for RA has been announced by the Garvan Institute in
Australia. Here is some info on the announcement............
Garvan Institute claims rheumatoid arthritis success
Researchers at the Garvan Institute in Sydney say they have developed
a new drug which can cure the symptoms of rheumatoid arthritis.
The drug was given to mice with the disease.
Within hours, their inflamed tissue returned to normal.
The Garvan Institute has signed a commercialisation deal with an
international pharmaceutical company.
Professor Charles Mackay says they hope to start human trials of the
drug next year.
"You can induce rheumatoid arthritis in mice and their joints became
inflamed and swollen," he said.
"When you apply our drug you can completely reverse this process and
the joint looks completely normal and there is no evidence of any
inflammatory cells in the joint."
........sounds promising. Let's keep our fingers crossed on this one.
Christine

Aound the time that I was diagnosed with RA, I read an article in the
doctor's column in the Sunday "Parade" magazine anout a man in his 70s
who discovered he had leukemia. He was certain it was the end of the
road, despite the fact that his doctor told him that there were some
exciting research breakthroughs happening with the type of leukemia the
man had. Ultimately, the man was able to take advantage of new meds and
was completely cured. I wish I had saved that article, because it
surprised and heartened me so much.
Sierra

Hi all
I just had my first visit here in Port st lucie FL to the rheumy
today. It went very good. Because we r trying to have a baby(with
God's Blessing) she recommended plaquenil until such time i become
pregnant. she said that plaquenil is not FDa approved during
pregnancy. Still have to do the blood work b/4 i begin the medication.
The deformity to my toes and hands can not be reversed. So i have to
start some kind of meds....So any scoop i can get i would appreciate.
Ps: Thanks Andie for recommending her. Now I need a pulmonoligist in
this area and a good ob-gyn/fertility specialist in my neck of the
woods or close by like Stuart and such
God Bless

I was just looking at my humira ingredients on the package. Last week we were posting about humira and why it might burn. Someone said because of the preservatives....the package says that there are no preservatives in the humira. It does have sodium chloride and sodium hydroxide tho. Maybe it's the sodium ingredients that burn.

I've been off of humira for over a month now with a cold. Had to take antibiotics for 10 days so was taken off of MTX too. I can't wait to get back on my meds in the next few days! They sure work for me.

Hello,
My mom has decided to see an M.D. who runs an "alternative care"
clinic. He treats arthritis with something called prolotherapy, which
consists of injections of an irritant in the joint area that cause the
immune system to respond and supposedly heal the area. I e-mailed the
doctor and asked if that was such a good idea for people with
autoimmune disorders (my mom has RA) and he responded that he only does
them when a person is not in an active flare. I'm concerned! Anyone
know much about this?
Sierra

I am waiting to use Enbrel until my liver function tests come back.
Has anyone used Enbrel despite abnormal liver counts ?
I am in severe pain right now. Had started with Prednisone and
Methotrexate but had to stop. Major set back. Taken off work for 3
weeks I am scared for what the future may bring. Wondering whether my
RA is severe or not? I was dx'd in Sept '05. No remission yet.
Jackie

I have been diagnosed with RA in Sept '05. I have been on prednisone,
methotrexate and stopped because I was still in a lot of pain. The
methotrexate had to be stopped anyway due liver tests. Now I am
awaiting new results of liver test and then I am supposed to start on
Enebril. I was so swollen that I needed a 80mg booster shot of
prednisone and start up again with 20 mg a day orally. I have had to
take time off work because of all the sx. I am interested to find out
what level my RA is since I have not been in remission yet.
I am also worried about my finances because I will run out of sick
time before my RTW date.
Jackie

Something I just thought I'd ask.
My Rheumatologist on occassion prescribes me a Medrol pack, Im on one
now. I know this is a steroid pack like predisone, I'm just wondering
what the difference is? Predisone seems to give me an energy boost (a
side effect i like) and this doesn't (which is fine) so I'm wondering
if maybe it's just not as strong??
It seems like my Rheumatologist prescribes the Medrol and my family
physician has always prescribed the predisone pack. My mom is always
prescribed the predisone. The medrol is fine with me, it works and
hopefully maybe has less side effects but does anyone know the real
difference?
Just curious-

anyone here using Restasis? I've been given Restasis and Evoxac for Sjogren's Syndrome...

What ya know about Sjogren's......comments on the meds??

THANKS !
Carla :)

Is anyone experience burning a week or more after the shot.

If anyone went to the conference call that I recommended tonight I am so sorry, what a disgusting call, I sat here listening in utter disbelief and shame. Please forgive me.

I recently brought a nice button down blouse. The only problem I have is my right hand is deformed from the RA and I have a difficult time buttoning. I hate to think I have to quit wearing button down blouses. I like the style and I don't want my RA to determine what I do and don't wear. Does anyone know if there is a device out there to help with buttoning clothes? It seems there should be something out there. And please don't suggest tacky looking velcro.

Susie :(

The company VitaMark is having a conference call tonight and the reason I mention this is only as information for you to learn about how digestive enzymes work to help the body fight different forms of yeast. You can listen to the call only for information then if you decide to purchase digestive enzymes you can do so where ever you like. I simply believe that this is good information in relation to RA because of my belief that yeast is "at least" a contributing factor to why we suffer so much pain with RA. Here's the info on the call Thursday, February 2, 2006, 9:30 PM Central 10:30 EST | 8:30 MST | 7:30PST NEW! Phone (646) 519-5860
PIN Number 2186#

Also I am attempting to contact doctors practicing integrated medicine. I have written to the Arthritis Foundation to get contact information. My hope is to have a conference call with a Rheumatologist on this subject. If I am successful would any of you have interest in attending such a call?

Susan Dorey www.LivingWithRheumatoidArthritis.com

I have just joined your group and am looking forward to the help and
expert advice you all have been giving. I just had my first visit
with my Rheum. Dr. She is having me go thru several more tests but
she is pretty sure that I have RA. I have been suffering on and off
for the past year and a half. This most recent flare up has lasted
almost 2 weeks. The first week, my primary Dr would not give me
anything for the pain. I have days that I can not get out of bed
without crying from the pain. Is this normal? How long due flare
ups last?
I hate having this control my life right now. But it seems the more
that I let this get to me, the more pain and discomfort I have. Every
morning, I try to get up to go to work but the pain seems to have a
mind of its own. I have also had kidney stones in the past and that
pain I could deal with compared to what I am currently feeling. The
kidney pain was localized compared to the all over pain that I am
currently having. My hands, elbows, knees, feet and hips just plain
old hurt. Currently, they have me on just anti-inflam. drugs but
they aren't working to well. I have been advised to just give them
some time.
Thanks for listening. I look forward to talking to all of you in the
future.
Beth

Can anyone tell me how long of taking the shots before they felt
relief? I have taken 3 shots and on this last one (a week later) I am
still experiencing a burning sensation and was wonderiong if anyone
else has.

Vicky, thanks for explaining your reason for sharing; your intent was
good, so please do not feel badly! When I clicked on the message,
there was no angel image at all, only the text message with the
warning at the bottom: "If you delete this you will beg." Thus, you
can understand my reaction. It helped to hear what you intended to
share. Thanks.
Sierra

This is horrible I hope everyone is doing ok. I really miss the emails.
Angela

[INLINE]

Money Angel
This is a money angel
Pass it to 6 of your good friends and be rich in 4 Days.
Pass it to 12 of your good friends and be rich in 2 Days.
[INLINE]

I am not joking. If you delete it you will beg. Trust me!!!

I try to drink one gallon of water daily.
If I dont, I feel achy and my joints hurt.
Theres a book out...."Your bodies many cries for water"
That book will help you learn about what water
does for you body. And it will also tell you what
happens to your body when you dont drink enough
water. Its a very good book.
If you become dehydrated..........it causes many
many diseases.
I measure my water intake daily. I drink out of a quart
water bottle.........so I drink at least 4 of those a day.
Trish
AOL instant messanger - Trish8549
VISIT OUR WEBSITE FOR .....
Quality Vitamins & W.T. Rawleigh products
http://www.herbals-unlimited.com

I went to a pain management center today, with a referral from my
rheumy. I want to get off the oxycontin and percocet that the Dr. at
the hospital started me on, and its really not controlling my pain.
After a long review of my situation, the pain mngmt doc suggested we
try Avinza. It is a once a day, slow release pain control med that is
in the morphine family. He gave me a coupon, along with a
prescription to get 10 free pills. If it works, he will write a
prescription. He said to stop the Oxycontin tomorrow and take this
instead, and I can still use the percocet if needed.
Anyone else heard of this drug or have any experience with it?
Thanks,
Miriam

I just want to write a thank you to all that responded to my question
about the possible skin reactions to MTX. I appreciate it :)
My dr. comes back in town on Monday, well I shouldn't say "in town"
because I actually drive 1 1/2 hours each way to the dr. *ugh* but
she'll be back in her office and I can hopefully get some answers and
find out what I'm to do now :)
Thanks

Hi
Yesterday my doctor and I decided that I will start wearing a patch for
pain called fentanyl. Anyone have any experience with this patch,
positive or negative? I won't take the pain pills the way I am told to
because I've seen so many people become addicted to them and I'm scared
to death I will so this is a compromise we reached together.
I'd like to hear your experience, not preaching, if you have any to share.
Thank you.
Ila in Maine mailto:sewcraftyme@...
"I'm Halloween's answer to Santa Claus."
Stephen King

I found out about this in my community. Its an excellent program. No income qualifications...anyone can use the program. Excellent for all of us on a fixed income. For $25 you get a box of quality food to last one person one month or a family for a week. There is no limit to how many boxes you can purchase, plus there are bonus buys that are wonderful. This is not cast off food, expired items or food bank stuff...this is first quality food...it shows the power of ministry bulk buying!

Please check out the link...there is a menu, as well as host sites so you can find where its hosted in your area. If there is not one in your area..you can talk with your church or religious organization about starting angel food in your area.

This is the menu for February:

February 2006 Menu (General Only)
(4) 5 oz. Ribeye Steaks
(4) 4 oz. Bacon-Wrapped Pork Filets
(1) 3 lbs. Breaded Frying Chicken
(6) 5.5 oz. Hot Pocket Subs
(1) 4 lbs. I.Q.F. Chicken Thighs
(1) 8 oz. Fish Nuggets
(1) 10.8 oz. Mushroom Gravy
(1) 28 oz. Pasta Sauce (1) 16 oz. Pasta
(1) 16 oz. White Rice
(1) 8 oz. Corn Muffin Mix
(1) 16 oz. Peas & Carrots
(1) 16 oz. Cut Sweet Corn
(1) 24 oz. Tater Tots
(1) 2 lbs. Onions
(1) Dozen Eggs
(1) 28 oz. Pie or Cake
*I.Q.F. - Individually Quick Frozen

ALL THIS FOR THE LOW COST OF JUST $25.00

**One or more specials available only with the purchase of a regular unit.**

FEBRUARY SPECIAL #1

(1) 4 lb. Steak Special (4 8-oz T-Bones, 4 8-oz. New York Strips) - $18.00

FEBRUARY SPECIAL #2

(1) 10 lb. I.Q.F. Boneless Skinless Chicken Breast - $18.00
LAST DAY TO PLACE AND PAY FOR YOUR ORDER IS: MONDAY, February 13, 2006
(Note that some sites may have earlier deadlines for ordering. Please contact host sites directly for that information.)
DISTRIBUTION DAY IS: SATURDAY, February 25, 2006

You Must Bring A Large Box To Pick Up Your Food
Angel Food Ministries Reserves the Right to Substitute Any of the Above Items Due To Availability, Cost and Quality.

We Accept Food Stamps (EBT).

http://angelfoodministries.org/

To group moderators please add this to your links section.

Toni

Hi Ashley
My name is Ila and all my blood tests come back negative also but they
tell me I have non RH positive RA. My tests come back positive for
arthritis but not for RA. I have the swollen joints and nodules on my
knuckles as well. So yes, it could still be RA I'm sorry to say.
I wish you the best.
Ila in Maine mailto:sewcraftyme@...
"If you have knowledge, let others light their candles in it."
Margaret Fuller

Hi, I'm new and I am 16. Recently, I've been having bad muscle
weakness and joint pain, so I went to my primary care physician. She
told me that my joints were inflammed and she could tell that my hands
were swollen. They did a lot of tests (ANA, Rheumatoid Factor, Sed
Rate, ect.), but they all came back negative. Could this still be JRA?
Thanks,
Ashley

Hi all,
I was on and off plaquenil for about 1 1/2years and finally stopped
taking it due to the rash and skin irratation it caused, primarily
on my face.
I was put on MTX about 3 weeks ago and have taken 2 doses,
coincidentally the same rash has returned to my face. I stayed off
my plaquenil about 4 months before going on MTX and my skin was back
to perfect during that time, 2 doses of MTX and the "rash" is back.
I called doc today since tonight would be my next dose and she's out
of town till Monday so the dr on call said to wait and skip this
dose till I can talk to her.
Anyonelse have skin reactions to MTX? I'm feeling frustrated because
I dont remember hearing about skin problems with MTX like with
plaquenil and am wondering what I can take that won't make my skin
look so bad. It gets a raised red bumby/hive type looking rash.
Thankfully my makeup covers it but it sometimes itches and burns.
Not something I want to tolerate long term from my meds.
T.

I have been having problems taking my meds. I usually take them at bedtime on Friday nite so I can sleep in the next day. But life as been very busy and there really is not a good time. I just hate walking around with a terrible headache for a week after taking Humira.

Does anyone else suffer from headaches after taking humira? I know I had the same problem while on Enbrel. Does anyone else struggle with what day to take there Humira, MTX or whatever drug gives you the most trouble?

The fact that it has side effects makes me skip meds a lot of the time cause I want to feel good to get things done with my family and such.

I have also found something that kinda works for the burning. When it starts to burn..continue injecting but rotate the needle a bit in the skin. It disperses the liquid in a different direction. That way I can injection fast and get going. I have a hard time holding the needle and going real slow.

Toni

HI SUSIE

WE ARE STILL CHECKING ON WHAT WE CAN DO FOR YOU SINCE YOU LOCATED AWAY FROM BALTIMORE. HERE IS OUR IRB APPROVED INFORMATION. SEE THE ATTACHMENT FOR DETAILS AND IF YOU HAVE ANY QUESTIONS YOU CAN CALL KATRINA.
suzette ridgeway <cat_lady20042003@...

I don't get a lot of Spam and what I do get goes in my Bulk. I just 'round file' it like I would direct junk mail anyway.

Susie
Annette McKinnon <anetto@...

I don't see many myself

Annette

On 1/18/06, David H. Hughes <dhhughes@...

Do you feel like this group is receiving a lot of "SPAM" posts? Please
let me know if this seems to be a problem.
David Hughes
Group Owner/Moderator
dhhughes@...

SPONSORED LINKS

Rheumatoid arthritis support group Rheumatoid arthritis Health network
Global health

BASI Baltimore is having a RA study paying $2550.00 for those taking
Methotrexate for at least 3mths. If your interested or know someone
who is interested email me ASAP.
Katrina

BASi Baltimore has a RA study paying $2500.00 for those taking Methotrexate. Please contact me via email ASAP if interested.

Thanks

Katrina
southerncross032003 <rossmob@...

I understand that along with the diagnosis of RA goes an increased
risk of developing heart disease. Does anyone have more information
on this? Have there been studies done to confirm this and are there
any measures that can be taken to reduce the risks?
I would appreciate your comments.
Thanks
Christine

http://www.abcnews.go.com/2020/Health/story?id=1527774

20/20's report. He's been BANNED from selling PRODUCTS in the
US....but a book is considered Free Speech....so he can sell that....In
the interview...he dodged questions....and they busted him in several
lies.....and he dodged that too. In one section....he had to pay
something in the tune of 2million....So he gave them one of his houses
(@@).....
http://www.abcnews.go.com/2020/
This is a snip from another web site........(@@)
I have an interview tonight on Nightline with controversial TV pitchman
Kevin Trudeau, the only person even banned by the U.S. government from
selling products on TV...
Carla :)

I drink 3 - 4 quarts of filtered water daily. If I don't my joints hurt.
So Yes drinking lots of water helps RA pain go away.
I am not on any meds and I was RXed in my early 30 and I am now 50.
I drink LOTS of filtered water.........I do not touch artificial
sweeteners because they make my RA hurt. I take lots of
supplements,,,,,,,,,watch what I eat (no bleached flour, no sugar, no cokes
etc) and I walk daily.
The only way you can tell I have RA is to look closely at my hands as two of
my fingers are a little twisted up.
So yes drinking filtered water - lots of it - help RA.
Patricia (Trish) Koch
1-888-520-3012
AOL instant messenger - Trish8549
VISIT OUR WEBSITE FOR .....
Quality Vitamins & W.T. Rawleigh products
http://www.herbals-unlimited.com

Good Morning,
Thanks to all who responded - at least I know I am not
alone! Thanks for all the suggestions - wish me luck
- I have to try this again on Monday AM. Failing list
I will have to go on a wait list for the new Open
Sided MRI machine that is not covered by Health Care.
Fern

I think we can ALL agree that RA is different than OA or many other health
issues and, in
most all cases, is made worse by failing to work with a rheumatologist and
traditional
meds. I personally don't believe in a "natural CURE" for RA and have no
intention of giving
up on traditional medicine, but I don't think there is anything wrong with being
open-
minded aobut the natural world around us for relief as well.

what did it say???

20/20 tonight?? Interesting info about Kevin Trudeau (sp)....and his
Book he sells. (@@).
Carla :)

I am what people would call a Diet Coke aholic. I don't drink much
water and never have. I do drink a lot of juices, milk, etc.(so I don't
think the caffeine is the main issue). I'm wondering if anyone notices
a difference in their RA symptoms if they up the daily intake of H2O?

I was sorry to hear about Dr. Pat but found something very amusing.
My RA doctor back in Colorado Springs is called "Dr. Z" by his patients
as well as his staff because his last name is hard to pronounce based
upon the spelling . I am now in West Virginia(followed my boyfriend-his
work brought him here) trying to get my health insurance re-instated
through Cobra($300/month) since the company I worked for in the Springs
went bankrupt. I really like and trust Dr. Z but as soon as my health
insurance(HMO)is re-instated (only days away)I will have to go through
the whole PC to recommend RA Specialist process here in the West
Virginia panhandle. Does anyone know of a good PC-RA specialist
network in this area?

I understand that along with the diagnosis of RA goes an increased
risk of developing heart disease. Does anyone have more information
on this? Have there been studies done to confirm this and are there
any measures that can be taken to reduce the risks?
I would appreciate your comments.
Thanks
Christine

Hello I have a question, maybe someone can help.
My mom has rheumatoid arthritis
* She is taking Methroxate and Prednisone
* In the last few months she has lost the taste of food and/or
certain foods (onions, meat, peanuts to name a few) have a very
horrible taste to the point that she can't eat them. So far only
sweets have the same taste. Note that as time goes on, more and more
foods are tasting horrible thus reducing her choices in foods to eat.
* She is taking zinc to help with the taste but it has been
ineffective
* I wanted to know if anyone is having this taste issue and what can
be done to improve the taste or at least reduce the horrible taste
she is getting.
Thank you for taking the time to read

Do you feel like this group is receiving a lot of "SPAM" posts? Please
let me know if this seems to be a problem.
David Hughes
Group Owner/Moderator
dhhughes@...

Good Morning,
Just wondering if anyone has experienced
claustrophobia while having an MRI? I was scheduled
for a CSPINE and I was so paniced and striken by
claustrphobia (which I never knew I had) - I had to be
rescheduled to have an 'IV sedative' MRI next week.
The past 2 nights I have awaken in a sweat feeling
like the walls are closing in on me. Had anyone
experienced this - will I be OK doing the IV
procedure?? I am feeling so paniced and I don't think
they will ever consciously get me back into that
tunnel again!
Signed,
Feeling very silly about the whole thing!

Hello, Im Sarah and new to this group. I am 30 years old and was
diagnosed with Sjogrens about 2 yrs ago and rheumatoid a few months ago.
I recently have discovered a round knot under my skin on my knuckle.
Just wandering if anyone has the same. I read one time before about
people that had this, but I did not pay that much attention.
I live in Texas, married, and have 4 great kids. Brian 13, Julienne 9,
Abbie 5, and Race 3
We live on a small ranch, and have lots of pets!!!2 Horses, Cows, 4
dogs, 5 cats, a chinchilla,2 chickens,2 ducks on the pond and a hamster!!!
I am glad there are groups like this so we can learn from one another
about these diseases.

Some people are telling me that Reliv is great for arthritis. I find
these claims hard to believe. They are giving me testimonials from
diabetic and arthritis patients who have made miraculous turnarounds
and are cured. I'm pretty sure it's a scam or it would be the favorite
of all the doctor's. Has anyone ever tried this? I'm curious, but not
curious enough to try it myself.
Stacey

Hi, I'm planning to move to northern Arizona. Anyone know if the
climate there has any effect on RA? I currently live in the south and
have pain whenever barometric pressure dips. (meaning rain) Anyone
living in the Flagstaff area now? Thanks for any info!
Jill

well I will be going in to the hospital in a couple of days to have my
knee replaced so I will be gone for awhile will be back as soon as I
can good luck to all and take care talk to y'all latter
Sherrie

My rheumatologist recently discovered that I have thyroid nodules which may or may not be cancerous. I went to the endocrinologist (after waiting 2 months for an appointment) and am waiting for the results of some blood work before he can create an action plan regarding getting a biopsy. I read some literature he gave me regarding thyroiditis and it sounds like it is condition related to the same immunilogical disfuntion that causes RA.

Has anyone else been diagnosed with a thyroid disorder or been told that it could be related to RA? I'd appreciate any insight I can get.

Andie

Hi
My name is Ila and I live in Maine with my husband Mike (who is on
kidney dialysis) and my 12 year old daughter Ilana. I also have a son
who is 32. I am 47 years old. I am originally from KY and was in the
Navy for 2 years in CA before coming to ME in 1982.
I was diagnosed with arthritis when I was around 25. Since then I have
been diagnosed with bursitis, carpal tunnel, endometriosis, seizure
disorders, irritable bowel, and a myriad of other things including
Fibromyalgia, Chronic Fatigue Syndrome, Degenerative Joint Disease and 2
days before this past Christmas (05) my PCP/DO told me that I have non
RH positive Rheumatoid Arthritis which was not a surprise to me.
I come from a family (on my father's side) that lived to be well into
their 90's and they were all twisted and wasted up with this disease and
from the pain I have been going through the past 3 or 4 years I knew I
had it even though the blood tests came back negative for it. Right now
I am on Percocet 3 times a day and Sulfasalazine 500 mg 2 times a day
(that might be a generic name) as we are just starting to try treating
this.
I also have PTSD x 4 as well as some anxiety issues from abuse from my
parents and former husband and am pretty much a homebody. Depression
was never an issue for me until 1995 when the doctors made me quit work
because my pain was so bad I could no longer focus on my job and do it
properly. I was in law enforcement. I began as a road officer and
when the arthritis became too painful that I felt I wasn't reliable
enough to be safe backup for my fellow officers I took myself off the
street and went into dispatching where I worked as long as I could. One
day because I was trying so hard to deal with my pain I forget to send a
rescue to a auto accident and the doctors and I knew it was time for me
to leave before I got someone seriously hurt. That was the hardest
thing I have ever had to do and I still to this day agonize over it.
I enjoy sewing of all types except for making clothes. I quilt for
charity and family. I embroider, cross stitch and bead, I do redwork
and just about anything you can think of with a needle and thread. I
also have a embroidery machine, a sewing machine and a serger and when
the depression loosens its grip on me I enjoy using them to make things
for people.
I also love to read anything but mushy Harlequin romance novels. I
prefer Stephen King, and law enforcement books, forensic books and, well
I will read just about anything. I am like that robot in the movie
Short Circuit who is always in quest of knowledge.
I am hoping that when my daughter is 18 and old enough to go off to
college that somehow I will find the funding to become a forensic
psychologist which is where my interest has been even before the movie
Silence of the Lambs.
I am looking to chat with others who are dealing with this disease, who
like me are scared but who are not going to let it rule their lives as
long as that is possible. I would like to discuss hobbies and books,
pets or whatever.
I have 8 birds, a white capped Pionus who is Hunter, a cockatiel, Yugi
and 5 parakeets: Roland, CB, Coffee, Cream, Sugar, and a Peach Faced
Lovebird Priscilla. They greatly brighten my day with their antics and
their love.
Ila in Maine mailto:sewcraftyme@...

A friend just alerted me to this website and I thought some might be
interested:
www.raandpregnancy.com

I finally got the doctor to see me after 2 days of begging the office
to let me in. I got pissed off and told them I was coming to get my
records. When the Dr. found out she called me and I told her they
wouldn't let me in and how much pain I was in with my knee. She
reprimanded the receptionist on the spot. When I got in and they found
out my right kneecap was moving out of place, tendenitis and bursitis
both knees, they were talking about firing her. Needless to say I got
really good treatment all the doctors were looking at my knee. They
said if I had of waited until 2/15/06 that I might have had to have
surgery.
Stacey

Hi, I have just been put on MTX after about 18mo of therapy on
Plaquenil and mobic. The plaquenil worked wonderfully for me with no
side effects other than skin irratation, but would get pretty severe
on my face so we stopped that and I know have been put on MTX pills,
along with folic acid and still continuing my mobic.
I just started the MTX last week and was told to take it with my
dinner to lessen any stomach upset. I did this and sure enough about
2hr after taking them I was still nausiated so badly for about an
hour or so. Terribly nausiated. I was also extremely tired the next
day...and "coincidenatally" I came down with what we think was the
flu the very next day as well and I'm just now back to feeling
better and am due to take my next dose on Tuesday.
I'm little nervous about taking them again. Deep down I fear they
brought on my sickness this week but I know that probably sounds
silly. I'm wondering though if that nausea is normal or I think I've
heard that the injections are easier on the tummy; any suggestions?
Thanks -
Tracy
It's Girl Scout Cookie Time
Taking orders NOW! :)

I saw my doctor today. I've been taking plaquinil and voltaren since
August 2004. We added methotrexate in June 2005 and Humira in
September 2005. I get headaches and nauseous from the MTX and we've
reduced the dose (at a higher does I was getting vertigo and
vomiting). I asked if there was anything we could do to alleviate the
side effects and he said I should stop taking it for four weeks and
we'll see if there's any changes. He said the Humira works better
with the MTX but we'd see how I reacted without it.
He said that if I needed *something" with the Humira he's switch me to
sulfasalazine. The side effects on paper seem to be the same as the
MTX. Do any of you have experience with it?
We're also changing from voltaren to plain aspirin for the next few
weeks. I also have raynaud's and aspirin is better for the
circulation and we're hoping to get some relief there. I guess they
also give beta blockers for raynaud's but since my blood pressure is
naturally low it won't do me much good if I'm passed out all the time.
Is anyone taking aspirin as their main analgesic/anti-inflammatory?
How much do you take?
Thanks!
susan

Sherrie,
Hang in there, it will be all right. The hospital won't let you be in pain. They had meds they give you that help a lot. Just work your hardest in therapy, it is very hard but worth it, so is the operation. Keep remembering that, it is worth it. Jo Ann

Sherrie <scorn720@...

Thank you for your help and thoughts I will be looking forward to
talking to you after the surgery as i don't think i will be going
any were after it for a while will keep you informed of how i am
doing
sherrie

I tested positive for the Rheumatoid Factor but,was not given the
diagnosis of RA. I have very sore joints, my feet, knees, elbows and
fingers and thumbs. The rheumatologist I went to was very rude and I
did not go back to find out the results of additional tests he ran. I
called his office and was told that everything came back normal.
Where do I go from here?
The high RH factor came up in some routine blood work I had done. My
GP sent me to the Rhuematologist for a follow up but apparently I
don't have it. Can something else cause my RH factor to be high? I
also have Interstitial Cystitis, and IBS. Thanks for the replies in
advance. Mar:)

Hi,
My name is Daniel Fuller and I am the project coordinator for a research project
entitled
T.A.M.E. (Tempering Arthritis by Managing Exercise). Dr. Nancy Gyrucsik who is a
professor at the University of Saskatchewan is leading this project. We are
looking for
participants to be in a study to look at what stops women with all forms of
arthritis from
being physically active.
Who can participate?
Any woman aged 21 and over who has been diagnosed with arthritis by a doctor and
lives
in Canada can participate in the study.
How can I participate?
To participate, you will need to complete a survey. The survey will ask you a
number of
questions about what keeps or doesn't keep you from exercising? ALL PARTICIPANTS
AND
THEIR ANSWERS WILL BE ANONYMOUS!
How can I do the survey?
To participate go online to www.tamearthritis.net and fill out the survey.
Please complete
the survey in one sitting and do not hit the Browser back button. The survey
should take
15-20 minutes to complete.
How will the information from the survey be used?
Results will be used to create a measure of barriers to physical activity for
women with
arthritis. The measure will then help us identify the barriers that prevent
activity the most.
Knowing this will help with designing better programs to help women better deal
with
barriers, be active and manage their arthritis.
This Project is important and we would appreciate your help.
1) Regular physical activity participation is a key strategy to help women
cope with this
incurable disease. Regular physical activity has been found to help women with
arthritis
feel better, physically, mentally and emotionally.
2) 75% of people with arthritis do not participate in regular physical
activity.
If you would like more information about this study please feel free to contact
me at
tame@.... Please feel free to forward this email to friends or relatives
who are
affected by any form of arthritis. The more participants we can get for this
study the better
our information will be.
Thank you for your time,
Daniel Fuller
TAME Project Coordinator
College of Kinesiology
University of Saskatchewan
87 Campus Drive
Saskatoon, SK
Canada
S7N 5B2
Phone: (306) 966-1075
Fax: (306) 966-6464

Hello,
I have been searching for a group that would be able to provide some
support for people with RA (Rheumatoid Arthritis). I hope I have
found the place. I was diagnosed with RA only 10 months ago at the
age of 27. I have so many questions and yet I do not know anyone
with the disease to ask advice to. Anyone that takes the time to
read my message and respond...thank you!
Dilema 1: My husband and I currently reside in Kansas but we had
planned on relocating to New York before we found out about the RA.
When I ask my doctor if I should still make the move, he really only
tells me that I should not let the disease control my life. I agree
with this perspective to a point but I do not want to move to a
climate where I would truly suffer more. Any advice? Anyone live in
NY with RA?
Dilema 2: My husband and I have one child together. We had this
beautiful boy before the onset of this disease. We would love to
have more children but I worry what it will do to me. Will the
disease get worse? My doctor again says if I want to have more
children I should. I have been told my RA was brought out by having
my son. Will I be putting myself at risk by having another child?
I am sorry my message is so long. These questions are worrying me as
the pressure is mounting (husband would like to have another child
asap and we are scheduled to move in less than 6 months). Enough
worrying anyway that I am having trouble sleeping.
Besides these few things...I need to remember I do have a truly
blessed life. Thank you for listening and any support/advice you
could provide would be appreciated.
Sincerely,
Cassandra

Hi All,
I wanted to let you all know that I am pregnant! I just found out today, I know
it
is early on but I wanted to tell you because I am sure I will need your support
through this time.
My RA is in pretty good shape. All that is bothering me is my CMC joints and I
am wearing my therapy gloves. My Costochondritis is in a little flare because
my breasts are already big and my rib cage can't handle it!
I feel like this is a miracle and I am thrilled. I had so many doubts about
having a baby but I truly felt if it was God's will it would happen and here I
am.
I had also asked my father up in Heaven to make me pregnant by Christmas
and I was. I feel like he is looking down on me and smiling because I have
made him a grandfather.
Please send good thoughts and prayers my way!
Elizabeth

I gave myself the first MTX injection last night, and everything went
well. I needed my usual nap today, but otherwise felt good.
Sierra

Ok I took the first humira shot yesterday. It burned like fire!!!! I left it out for over an hour and it still burned...not as bad as I expected...but it still burned.

I saw my rheummy yesterday also. I begged for steroids. He claimed he just read a journal article that use of steroids increase cardiac risk. So he does not routinely give steroids to his patients. They are reserved for those times when you just can't stand it.

So he looked at my hands, feet and fingers. They are soo sore. He said my tendon sheaths are VERY swollen and hopefully the Humira will kick in and help that out soon. He gave me a humira start kit and a package to get $300 off my first six months of humira. I will get the details on how this works on Monday since my insurance claims they cover humira at 100% using my major medical.

I learned that the staff member that set my appnt for this visit is a part-time and has NO clue what she is doing. when I told her I was in pain she put me on hold and then came back and told me that the doc wanted to see me for a steriod injection. I was all happy...relief!! She also said there would be NO co-pay. so I came in and got embarrassed in front of the entire clinic. about the co-pay which I will send in on Monday. Then told that this girl is a total idiot.

You know some days I just want to reach out and slap the hell out of these people that work in these doctors offices...nothing pisses me off more than people giving wrong info!! Whew...ok off my soap box.

I spoke with the girl that does all the billing and she said there is always a co-pay no matter what the reason for the visit so from now on come prepared to pay it. The do not extend any credit to anyone. So I guess from now on if you are sick and have no money you get NO care. Hmmmm.

I just wished we had more choices when it came to doctors in this town...but he is the only rheummy.

So now I am off to solve my other problem getting labwork done. My lovely new pain in the butt insurance requires if I want my labwork paid at 100% that it must be done in a doctors office. When I asked what docs at authorized lab facilities in office that I could go to? There answer was, we have no clue...you need to call the docs and ask...they can look at there contract and tell you if they are authorized to perform labs!! Cigna has lost there mind!!!! this is so stupid.

So I called around...got no answers out of anyone. I did get one large clinic where I use to go to tell me that I could just take my chances and see what happens. I may consider going back to them...I stopped cause it was difficult to get appnts plus it was 30 miles away. With gas prices and a co-pay that has doubled...I thought it would be better to find a doc close to home.

Now I can go to any lab that is in-network...pay my deductible plus my 20% and they will do my labwork. I tried a few of the local labs...they do NOT bill for anything...they make you sit there while they figure out what it is going to cost and ask for money up front. Now I went to two different labs hoping to find a cheaper price...ugghhh...I got tired of sitting there waiting while they called the insurance company cause they did not believe me what they will or will not pay. Even though the first place gave me a print out of exactly the pay level, insurance discount as well as the cash portion discount.

So I am totally disgusted with this insurance. Even my rheummy is disgusted. He had three phone calls from insurance companies that interrupted my appnt time with him. But he had to take them cause he was trying to get meds ordered for patients just like he had to do for me.

Well, I am through venting...thanks for listening.

Toni

I went to the ortho all this fall for my back pain and he sent me to a
Rheum. doctor. She says I have RA in my hands and possibly feet. I
don't know very much about this, but is RA affecting my back?
Everyone's worried about my hands, feet and knees, I've lived with
this discomfort for 5+ years. I've only had one visit and I don't go
back until 2/15 and they are trying a second drug on me for my hands.
But what about back pain?
Stacey

Hi everyone,
I am new to the site. I live in Ireland and my Doctor diagnoised me
with RA about a year ago. I seen a rhuematologist before christmas and
he feels that I also have RA. I am going into hospital soon for 2
weeks to be assessed and to try new drug treatments.
One thing that is confusing me is that I have no swelling or burning in
any of my joints. I have a lot of pain and high esr and crp levels and
most of my joints are effected on both sides. From what I have read on
the site swelling and feeling burning or heat sensations is part of
RA. So can anyone tell me why I do not have these symptoms or is it
that I will get them but further down the road.
Thank you,
Ann.

Hi everyone!
This virus alert is official! I will be sending out three messages which I have prepared for tomorrow and then I will not be online until after the tenth when microsoft is suppose to send out the patch for this latest virus which is suppose start hitting our computers on the sixth. I am doing this to protect those of you who are on my list as I do not want to take any chances of your being contaminated with this virus which they tell us can do serious damage to our computers. I will not be accepting any add ons after tomorrow until I reeceive the patch. I am asking you all to read and follow these instructions below also and make sure your virus program is updated. Thanks and may God protect all of us from this virus! In Christ's love, Helen

THIS IS A GOOD IDEA

In regard to a threat of a major virus hitting our computers:

1. Please update your anti-virus programs daily

Until this all passes by.

From what I understand, there is no fix for this

Virus as of yet. It is due to hit our computers on

January 6th, 2006.

Here is the article about it, if you would like to read up on it.

http://WWW.msnbc.msn.Com/id/10684853/

Hello,
I am going to try injectible MTX. What can you tell me about it?
Sierra

There's been so many questions I just thought I would share my experience
with Humira. I was on Enbrel previously and Humira has worked better for
me. It has always come well-refrigerated, no problem. I have mine delivered
at work and put it in the fridge.
My Humira is covered by my Major Medical Insurance (whatever that means!)
and I do not have to pay a co-pay. I do believe there is a limit, up to $5
million, so I've got to watch it, lol!
I leave it out for about a half an hour. For me, it burns like Hell, I have not
found a way around this. I inject it slowly (30-60 sec.) and don't get up for a
while. I do it in front of my computer and I put up a nice picture or play
videos
to distract me from the pain and I find this works pretty well.
Humira does hurt but it is once every 2 weeks and it is better than the constant
and crippling pain of RA!
Elizabeth

Hello,
Soon it will be time to get ready for the rheumy appt. I'm nervous. I
hope I can communicate everything I need to in the best possible way,
and I hope my rheumy makes the best possible decisions for me. Please
send good thoughts/prayers my way. Thank you!
Sierra